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Saturday, 23rd October 2021
Partners' resources

Developing e-learning in palliative care education in sub-Saharan Africa: Ideas and examples for the for the selection of appropriate media and technology (2012)

Developed by Sobell House Study Centre at Churchill Hospital in Oxford, Developing e-learning is an interactive report aimed at palliative care trainers and educational institutions in sub-Saharan Africa.
It addresses the potential for e-learning in the short and medium term and looks at the range of e-learning tools available and their comparative costs. It also suggests questions that should be considered when developing e-learning courses and presents case studies which illustrate the successful use of e-learning in health.

Integrating palliative care into HIV services (2012)

This toolkit, produced in collaboration by The Diana, Princess of Wales Memorial Fund and fhi360, provides HIV care and treatment programme managers and clinicians with practical steps on how to integrate palliative care into adult and paediatric HIV services. It reviews the many benefits of integration for the patient and health system; presents key issues to consider when planning for integration; offers clear, succinct ways to initiate and sustain integration; provides clinical and organisational tools to guide integration and contains a list of helpful resources at the end of each section

To request a copy of the accompanying CD-ROM for further resources, please contact fhi360.

Evaluation of the Hospice Palliative Care Association of South Africa: Executive summary (2012)

The Hospice Palliative Care Association of South Africa is a voluntary association of organisations providing palliative care services to people living with life-limiting illnesses and their families across South Africa.
This is a major evaluation of its work and services.

Evaluation of three funded palliative care programmes in Kenya, Malawi and Uganda (2009)

This report documents an evaluation assessing the impact of three palliative care projects in sub-Saharan Africa on individuals with life-limiting illnesses, their families and carers and their local communities.
The evaluations were carried out in 2009 of the Maua Hospital Community Based Palliative Care Programme in Meru, Kenya, the Malawi Home Based Palliative Care Charitable Trust in Blantyre and the Kitovu Mobile Palliative Care Service in Masaka, Uganda.
The evaluations revealed that all three programmes were achieving considerable success in delivering high-quality and holistic palliative care in a context of poverty.

I was sick and you cared for me: A church-based response to palliative care in Tanzania (2011)

This report is a case study of a two-year pilot project led by international NGO Tearfund, to introduce palliative care into the hospitals and remote communities of Tanzania's lake zone, in the north of the country.
This pilot project integrated palliative care into the home-based care programmes of three existing Tearfund partners, establishing, training and supporting multi-disciplinary palliative care teams and volunteer caregivers, embedding palliative care into the hospital sites, setting up effective referral systems and procuring a secure supply of morphine for pain relief.
This case study identifies the approaches used, describes the main successes and challenges of a church-based model of palliative care and draws some conclusions as to ways forward. It also demonstrates how NGOs can integrate palliative care into their health programmes and policies.

No Secrets - Helping families and carers talk to children about life-limiting illness (2010)

This illustrated booklet is based on a study conducted by Dr Mary Bunn at Umodzi, a children's palliative care service at the paediatrics department of Queen Elizabeth Central Hospital in Blantyre, Malawi. It summarises the findings of Dr Bunn's research and international research, and provides a simple guide for healthcare workers who want to encourage families/carers to talk to their children. The report includes tips on: encouraging healthcare teams to support the principle that children should be told about their own condition; practical ways healthcare staff can support families/carers; and where, how and how much families/carers should tell a child.

Paediatric palliative care in sub-Saharan Africa: an appraisal - Executive Summary (2010)

A significant challenge to the growth of paediatric palliative care in sub-Saharan Africa has been the limited evidence base to inform effective, evidence-based care for children. This report, published in July 2010, looks at the current evidence base and makes a series of recommendations for researchers, practitioners and health policy-makers.  It is hoped that this report will help create an impetus for more research funding, better evaluation and reporting of existing palliative care services for children and the development of a range of care models which will ensure palliative care is available to all children who need it. Click here for the full report.

Palliative care at home for young children in Africa: Training and support package (2012)

A practical, interactive toolkit and training module designed to help community health workers teach caregivers how to care at home for children with HIV. The package consists of a training manual, a supporting guide for home-based care workers, a toolkit for caregivers, along with worksheets and certificates for caregivers, home-based care workers and trainers. You can also download helpful handouts, information for managers and administrators, and an evaluation of basic competencies. Click here to download the main cover and introduction for the whole package.

Palliative care in sub-Saharan Africa: an appraisal (2004)

This study, published in 2004, assesses the provision of palliative care across sub-Saharan Africa and makes recommendations for scaling up its delivery to reach more of the people living with HIV/AIDS and other life-limiting disease. Commissioned by The Diana, Princess of Wales Memorial Fund, the study carried out by Dr Richard Harding and Professor Irene Higginson of King's College London.

WHO guidelines on treatment of persisting pain in children with medical illness (2012)

Pain in children is a public health concern of major significance in most parts of the world. Although the means and knowledge to relieve pain exists, children's pain is often not recognized, is ignored or even denied. These guidelines address the pharmacological anagement of persisting pain in children with medical illnesses. As such, they replace the previous guidelines, Cancer pain relief and palliative care in children, which exclusively covered cancer pain. They include several clinical recommendations, including a new two-step approach of pharmacological treatment. The guidelines also point to the necessary policy changes required and highlight future priority areas of research.

I was sick and you cared for me: A church-based response to palliative care in Tanzania