Matovu JK, Wagner GJ, Juncker M, Namisango E, Bouskill K, Nakami S, Beyeza-Kashesya J, Luyirika E, Wanyenze RK. Mediators and moderators of the effect of the game changers for cervical cancer prevention intervention on cervical cancer screening among previously unscreened social network members in Uganda. BMC Cancer. 2023 May 11;23(1):428. doi: 10.1186/s12885-023-10924-0. PMID: 37170099; PMCID: PMC10173559. https://bmccancer.biomedcentral.com/articles/10.1186/s12885-023-10924-0
Rosa, William E., Juliet S. Lumati, Olusegun I. Alatise, Eve Namisango, Netsanet Bogale, Pedro E. Pérez-Cruz, M. R. Rajagopal, Lesley Taylor, and T. Peter Kingham. "Surgery: a crucial ally for universal palliative care access." The Lancet Global Health 11, no. 5 (2023): e650-e652 https://www.thelancet.com/journals/langlo/article/PIIS2214-109X(23)00066-9/fulltext
Wanyenze RK, Matovu JKB, Bouskill K, Juncker M, Namisango E, Nakami S, Beyeza-Kashesya J, Luyirika E, Wagner GJ. Social network-based group intervention to promote uptake of cervical cancer screening in Uganda: study protocol for a pilot randomized controlled trial. Pilot Feasibility Stud. 2022 Dec 7;8(1):247. doi: 10.1186/s40814-022-01211-z. PMID: 36476609; PMCID: PMC9727870. https://link.springer.com/article/10.1186/s40814-022-01211-z
Eve Namisango, Emmanuel B. K. Luyirika, Lawrence Matovu, Ann Berger. The Meaning of Healing to Adult Patients with Advanced Cancer https://www.mdpi.com/1660-4601/20/2/1474
Downing Julia, Namisango Eve, Connor Stephen, Batanda Patricia, Irumba Lisa Christine, Basemera Berna, Jatho Alfred, Nakami Sylvia, Nalubega Harriet, Kamate Antonia, Basirika Dianah, Zalwango Joyce, Nammudu Mable, Chiyoka Wedzerai, Kayondo Francis, Byaruhanga David, Rusanganwa Eugene, Davis Helena, Watiti Stephen, Gaolebale Babe, Ahern Lacey N, Thomas Lydia, Luyirika Emmanuel (2022) The Declaration on Palliative Care in a Pandemic: report of the African Ministers of Health Meeting and the 7th International African Palliative Care Conference, held from the 24th to 26th August 2022 in Kampala, Uganda and virtually ecancer 16 1474 https://ecancer.org/en/journal/article/1474-the-declaration-on-palliative-care-in-a-pandemic-report-of-the-african-ministers-of-health-meeting-and-the-7th-international-african-palliative-care-conference-held-from-the-24th-to-26th-august-2022-in-kampala-uganda-and-virtually/abstract
Mah, K., Namisango, E., Luyirika, E., Ntizimira, C., Hales, S., Zimmermann, C., Malfitano, C., Tilly, A., Wolofsky, K., & Rodin, G. (2022). Quality of dying and death of patients with cancer in hospice care in Uganda. Accepted for publication. JCO Global Oncology.
Germans Natuhwera, Doreen Agasha Birungi, Eve Namisango– African Palliative Care Association Delivering palliative care services amidst the COVID-19 pandemic at a rural hospice in Uganda.
WHO Health services learning hub. https://hlh.who.int/ab-detail/delivering-palliative-care-services-during-the-covid-19-pandemic
Nakami Sylvia, Executive, Margrethe Juncker, Eve Namisango. Maintenance of palliative care services during the COVID-19 pandemic in the Busoga Region, Uganda.https://hlh.who.int/ab-detail/maintenance-of-pcs-during-covid-19-in-the-busoga-region-uganda
Bagasha, Peace, Ronald Naitala, Elizabeth Namukwaya, Mhoira Leng, Elly Katabira, and Eve Namisango. 2022. “Cultural Adaptation and Validation of the Kidney Disease and Quality of Life-Short Form (KDQOL-SF™) Version 1.3 Questionnaire in Uganda”. African Journal of Nephrology 25 (1), 116-35. https://doi.org/10.21804/25-1-4840.
Rosa WE, Ahmed E, Chaila MJ, Chansa A, Cordoba MA, Dowla R, Gafer N, Khan F, Namisango E, Rodriguez L, Knaul FM, Pettus KI. Can You Hear Us Now? Equity in Global Advocacy for Palliative Care. J Pain Symptom Manage. 2022 Oct;64(4):e217-e226. doi: 10.1016/j.jpainsymman.2022.07.004. Epub 2022 Jul 16. PMID: 35850443; PMCID: PMC9482940. https://pubmed.ncbi.nlm.nih.gov/35850443/
Namisango E, Powell RA, Taylor S, Lukas R, Freeman R, Haufiku D, Mwagomba BM, Acuda W, Thambo L, Kambiya I, Luyirika EB, Mwangi-Powell FN, Harding R. Depressive symptoms and palliative care concerns among patients with non-communicable diseases in two Southern African countries. J Pain Symptom Manage. 2022 Sep 23:S0885-3924(22)00904-6. doi: 10.1016/j.jpainsymman.2022.09.008. Epub ahead of print. PMID: 36162705. https://pubmed.ncbi.nlm.nih.gov/36162705/
Namukwaya E, Nabirye E, Dandadzi A, Akeju D, Adejoh S, Namisango E, Nkhoma K, Ebenso B, Allsop MJ. "From the time you start with them until the Lord calls you": A qualitative study on the experiences and expectations of people living with advanced cancer interacting with palliative care services in Uganda, Nigeria and Zimbabwe. J Pain Symptom Manage. 2022 Sep 8:S0885-3924(22)00876-4. doi: 10.1016/j.jpainsymman.2022.08.022. Epub ahead of print. PMID: 36089175 https://eprints.whiterose.ac.uk/190439/
Elizabeth Namukwaya, Elizabeth Nabirye, Adlight Dandadzi, David Akeju, Samuel Adejoh, Eve Namisango, Kenneth Nkhoma, Bassey Ebenso, Matthew J. Allsop. “From the time you start with them until the Lord calls you”: A qualitative study on the experiences and expectations of people living with advanced cancer interacting with palliative care services in Uganda, Nigeria and Zimbabwe. September 2022 https://www.researchgate.net/profile/Eve-Namisango
Kibudde S, Namisango E, Nakaganda A, Atieno M, Bbaale J, Nabwana M, Kiyange F, O’Brien M, Luyirika EB, Orem J. Turnaround time and barriers to treatment of newly diagnosed cancer in Uganda: a mixed-methods longitudinal study. Afr Health Sci. 2022 Mar; 22(1):327-337. Doi: 10.4314/ahs.v22i1.40. PMID: 36032470; PMCID: PMC9382503. https://pubmed.ncbi.nlm.nih.gov/36032470/
Matovu M, Musiime E, Olak P, Mulindwa M, Namisango E, Songwe K. Impact of accreditation on health care services performance in Kiryandongo district, Uganda: a longitudinal study. BMC Health Serv Res. 2022 Feb 10; 22(1):174. Doi: 10.1186/s12913-022-07603-4. PMID: 35144593; PMCID: PMC8830999.https://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-022-07603-4
An E, Tilly A, Mah K, Lewin W, Chandrakumar M, Baguio A, Jaffer N, Chikasema M, Thambo L, Ntizimira C, Namisango E, Hales S, Zimmermann C, Wolofsky K, Goombs M, Rodin G. Protocol for the development and multisite validation of the Quality of Dying and Death-Revised Global Version scale. BMJ Open. 2022 Jul 25; 12(7):e064508. Doi: 10.1136/bmjopen-2022-064508. PMID: 35879006; PMCID: PMC9328109. ttps://europepmc.org/article/pmc/pmc9328109
Namisango E, Luyirika EBK, Berger A. Cross Cultural Adaptation and Cognitive Testing of a Psycho-Social-Spiritual Healing Measure, the NIH Healing Experiences in All Life Stressors-NIH-HEALS. Glob Adv Health Med. 2022 Jan 24; 11:21649561211067189. Doi: 10.1177/21649561211067189. PMID: 35096489; PMCID: PMC8793392. https://pubmed.ncbi.nlm.nih.gov/35096489/
Dipio R, Acuda W, Namisango E, Nalubega-Mbowa MG. Prevalence and factors associated with depressive symptoms among family caregivers of palliative care patients at Hospice Africa Uganda. Palliat Support Care. 2022 Jun; 20(3):375-382. Doi: 10.1017/S1478951521000730. PMID: 34154696 https://pubmed.ncbi.nlm.nih.gov/34154696/
Namisango E, Bristowe K, Murtagh FE, Downing J, Powell RA, Atieno M, Abas M, Ali Z, Luyirika EB, Meiring M, Mwangi-Powell FN, Higginson IJ, Harding R. Face and content validity, acceptability, feasibility, and implementability of a novel outcome measure for children with life-limiting or life-threatening illness in three sub-Saharan African countries. Palliat Med. 2022 Jul; 36(7):1140-1153. Doi: 10.1177/02692163221099583. Epub 2022 Jun 2. PMID: 35656638 https://europepmc.org/article/med/32081084
Rosa WE, Ahmed E, Chaila MJ, Chansa A, Cordoba MA, Dowla R, Gafer N, Khan F, Namisango E, Rodriguez L, Knaul FM, Pettus KI. Can You Hear Us Now? Equity in Global Advocacy for Palliative Care. J Pain Symptom Manage. 2022 Jul 16:S0885-3924(22)00822-3. Doi: 10.1016/j.jpainsymman.2022.07.004. Epub ahead of print. PMID: 35850443.https://pubmed.ncbi.nlm.nih.gov/35850443/?utm_source=gquery
Adegbite, Olayinka, Leigh Anderson, Eve Namisango, Sybil Chidiac, Osasuyi Dirisu, Jenna Grzeslo, Julia Hakspiel, Chinmaya Holla et al. "Women’s groups and COVID-19: An evidence review on savings groups in Africa." Gates Open Research 6, no. 47 (2022): 47 https://pubmed.ncbi.nlm.nih.gov/36204473/
Namisango, E., Matovu, L., Harding, R., & Berger, A. (2022). Existentialism and Spirituality in the Healing Process of Cancer Patients, United Kingdom and United States. Global Perspectives in Cancer Care: Religion, Spirituality, and Cultural Diversity in Health and Healing, 285 https://academic.oup.com/book/40139/chapter/341475096
Merriman, Anne, Germans Natuhwera, and Eve Namisango. "Spirituality, Culture, Traditions, and Other Beliefs Affecting Cancer Care, Uganda." Global Perspectives in Cancer Care: Religion, Spirituality, and Cultural Diversity in Health and Healing (2022): 367. https://academic.oup.com/book/40139/chapter/341475597
Richard A Powell, Cheng-Pei Lin, Ping Guo, Eve Namisango “Caring at the Culture and Spirituality Interface: Case Studies from China, Taiwan, New Zealand, and Sub-Saharan Africa Case Studies from China, Taiwan, New Zealand, and Sub-Saharan Africa April 2022 Doi :10.1093/med/9780197551349.003.0003
Afolabi, Oladayo A., Mary Abboah-Offei, Eve Namisango, Emeka Chukwusa, Adejoke O. Oluyase, Emmanuel BK Luyirika, Richard Harding, and Kennedy Nkhoma. "UWS Academic Portal." https://research-portal.uws.ac.uk/en/publications/covid-19-and-palliative-care-capacity-african-region
Luyirika E., Lohman, D., Ali, Z., Atieno, M., Mahenge, A., Mmbando, P., Muinga, E., Musyoki, D., Mwesiga, M.D., Namisango E. and Nosim, P., 2022. PC-FACS.
Luyirika E, Lohman D, Ali Z, Atieno M, Mahenge A, Mmbando P, Muinga E, Musyoki D, Mwesiga MD, Namisango E, Nosim P, Opio G, Pardy S, Ruzima A, Skowronska E, Uhagaze B, Zalwango J, Aluso A. Progress Update: Palliative Care Development Between 2017 and 2020 in Five African Countries. J Pain Symptom Manage. 2022 May; 63(5):729-736. Doi: 10.1016/j.jpainsymman.2021.12.026. Epub 2021 Dec 30. PMID: 34973351. https://europepmc.org/article/med/34973351
Braybrook, D., Coombes, L., Roach, A., Scott, H., Haroardottir, D., Bristowe, K., Ellis-Smith, C., Hills, M., Maynard, L., Anderson, A.K. and Namisango E., 2022, March. “If they knew what I thought was important that would help a lot more'': Methods for involving children and young people with life-limiting and life-threatening conditions in development of a paediatric palliative care outcome measure. In QUALITY OF LIFE RESEARCH (Vol. 31, No. SUPPL 1, pp. 2-2). VAN GODEWIJCKSTRAAT 30, 3311 GZ DORDRECHT, NETHERLANDS: SPRINGER.
Namisango E., Murtagh, F. E., Bristowe, K., Downing, J., Powell, R. A., Atieno M. & Harding, R. (2022, March). Psychometric and measurement invariance properties of a novel outcome measure for children with life-limiting and life-threatening illnesses. In QUALITY OF LIFE RESEARCH (Vol. 31, No. SUPPL 1, pp. 2-2). VAN GODEWIJCKSTRAAT 30, 3311 GZ DORDRECHT, NETHERLANDS: SPRINGER.
Luyirika Emmanuel BK. "Ugandan Culture." Global Perspectives in Cancer Care: Religion, Spirituality, and Cultural Diversity in Health and Healing (2022): 441.https://academic.oup.com/book/40139/chapter/341476036
Lin CP, Boufkhed S, Kizawa Y, Mori M, Hamzah E, Aggarwal G, Namisango E, Higginson IJ, Goh C, Harding R. Preparedness to Face the COVID-19 Pandemic in Hospice and Palliative Care Services in the Asia-Pacific Region: A Rapid Online Survey. Am J Hosp Palliat Care. 2021 Jul; 38(7):861-868. Doi: 10.1177/10499091211002797. Epub 2021 Apr 1. PMID: 33789503. https://pubmed.ncbi.nlm.nih.gov/33789503/
Ocan, M., Kawala, B.A., Kisangala, E., Ndagire, R., Wangi, R.N., Semakula, D., Kinengyere, A.A., Sewankambo, N.K., Katairo, T., Eve Namisango, Okullo, A.E. and Nalugoda, F., 2021. Covid-19 Infection, Illness and Deaths among Healthcare Workers in Low-and Middle-Income Countries: A Systematic Review Protocol https://www.researchsquare.com/article/rs-215109/v1.pdf
Luyirika E, Lohman D, Ali Z, Atieno M, Mahenge A, Mmbando P, Muinga E, Musyoki D, Mwesiga MD, Namisango E, Nosim P, Opio G, Pardy S, Ruzima A, Skowronska E, Uhagaze B, Zalwango J, Aluso A. Progress Update: Palliative Care Development Between 2017 and 2020 in Five African Countries. J Pain Symptom Manage. 2022 May; 63(5):729-736. Doi: 10.1016/j.jpainsymman.2021.12.026. Epub 2021 Dec 30. PMID: 34973351. https://europepmc.org/article/med/34973351
Nkhoma KB, Ebenso B, Akeju D, Adejoh S, Bennett M, Chirenje M, Dandadzi A, Nabirye E, Namukwaya E, Namisango E, Okunade K, Salako O, Harding R, Allsop MJ. Stakeholder perspectives and requirements to guide the development of digital technology for palliative cancer services: a multi-country, cross-sectional, qualitative study in Nigeria, Uganda and Zimbabwe. BMC Palliat Care. 2021 Jan 4; 20(1):4. Doi: 10.1186/s12904-020-00694-y. PMID: 33397321; PMCID: PMC7784352 https://pubmed.ncbi.nlm.nih.gov/33397321/
Afolabi OA, Abboah-Offei M, Namisango E, Chukwusa E, Oluyase AO, Luyirika EB, Harding R, Nkhoma K. COVID-19 and palliative care capacity, African Region. Bull World Health Organ. 2021 Aug 1; 99(8):542-542A. Doi: 10.2471/BLT.20.285286. PMID: 34354305; PMCID: PMC8319866 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8319866/
Namisango E, Bhakta N, Wolfe J, McNeil MJ, Powell RA, Kibudde S, Luyirika EBK, Mulema V, Feudtner C, Baker JN. Status of Palliative Oncology Care for Children and Young People in Sub-Saharan Africa: A Perspective Paper on Priorities for New Frontiers. JCO Glob Oncol. 2021 Aug; 7:1395-1405. Doi: 10.1200/GO.21.00102. PMID: 34546790; PMCID: PMC8457851. https://pubmed.ncbi.nlm.nih.gov/34546790/
Adejoh, S.O., Boele, F., Akeju, D., Dandadzi, A., Nabirye, E., Namisango E., Namukwaya, E., Ebenso, B., Nkhoma, K. and Allsop, M.J., 2021. The role, impact, and support of informal caregivers in the delivery of palliative care for patients with advanced cancer: A multi-country qualitative study. Palliative medicine, 35(3), pp.552-562.https://pubmed.ncbi.nlm.nih.gov/33353484/
Namukwaya, E., Mwaka, A. D., Namisango E., Mwesiga, M. D., & Downing, J. (2021). Current state of palliative care in Uganda. In Palliative care for chronic cancer patients in the community (pp. 267-278). Springer, Cham. https://www.researchgate.net/publication/345942571_Current_State_of_Palliative_Care_in_Uganda
Allsop Matthew J., Johnblack Kabukye, Richard A. Powell, and Eve Namisango. "Routine data and minimum datasets for palliative cancer care in sub-Saharan Africa: their role, barriers and facilitators." In Palliative Care for Chronic Cancer Patients in the Community, pp. 179-192. Springer, Cham, 2021 https://www.researchgate.net/publication/339974961_Routine_Data_and_Minimum_Datasets_for_Palliative_Cancer_Care_in_Sub-Saharan_Africa_Their_Role_Barriers_and_Facilitators
Afolabi OA, Abboah-Offei M, Namisango E, Chukwusa E, Oluyase AO, Luyirika EBK, Harding R, Nkhoma K. Do the Clinical Management Guidelines for Covid-19 in African Countries Reflect the African Quality Palliative Care Standards? A Review of Current Guidelines. J Pain Symptom Manage. 2021 May; 61(5):e17-e23. Doi: 10.1016/j.jpainsymman.2021.01.126. Epub 2021 Feb 19. PMID: 33617951; PMCID: PMC7894087. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7894087/
Jane Bates M, Gordon MRP, Gordon SB, Tomeny EM, Muula AS, Davies H, Morris C, Manthalu G, Namisango E, Masamba L, Henrion MYR, MacPherson P, Squire SB, Niessen LW. Palliative care and catastrophic costs in Malawi after a diagnosis of advanced cancer: a prospective cohort study. Lancet Glob Health. 2021 Dec; 9(12):e1750-e1757. Doi: 10.1016/S2214-109X (21)00408-3. Epub 2021 Oct 29. Erratum in: Lancet Glob Health. 2021 Dec; 9(12):e1657. PMID: 34756183; PMCID: PMC8600125. https://www.thelancet.com/pdfs/journals/langlo/PIIS2214-109X(21)00408-3.pdf
Ouma OK, Ephraim K, Loyce N, Namisango E, Nalugoda F, Ndagire R, Wangi RN, Kawala BA, Katairo T, Okullo AE, Apunyo R, Semakula D, Luwambo A, Kinengyere AA, Sewankambo N, Balinda SN, Ocan M, Obuku EA. Role and utility of COVID-19 laboratory testing in low-income and middle-income countries: protocol for rapid evidence synthesis. BMJ Open. 2021 Oct 18; 11(10):e050296. Doi: 10.1136/bmjopen-2021-050296. PMID: 34663660; PMCID: PMC8523956 https://search.bvsalud.org/global-literature-on-novel-coronavirus-2019-ncov/resource/en/covidwho-1476601
O'Brien KK, Dzingina M, Harding R, Gao W, Namisango E, Avery L, Davis AM. Developing a short-form version of the HIV Disability Questionnaire (SF-HDQ) for use in clinical practice: a Rasch analysis. Health Qual Life Outcomes. 2021 Jan 6; 19(1):6. Doi: 10.1186/s12955-020-01643-2. PMID: 33407538; PMCID: PMC7789190.https://www.researchgate.net/publication/348286692_Developing_a_short-form_version_of_the_HIV_Disability_Questionnaire_SF-HDQ_for_use_in_clinical_practice_a_Rasch_analysis
Lin CP, Boufkhed S, Pai AA, Namisango E, Luyirika E, Sleeman KE, Costantini M, Peruselli C, Higginson IJ, Ekstrand ML, Harding R, Salins N, Bhatnagar S. Preparedness and Capacity of Indian Palliative Care Services to Respond to the COVID-19 Pandemic: An Online Rapid Assessment Survey. Indian J Palliat Care. 2021 Jan-Mar; 27(1):152-171. Doi: 10.4103/ijpc.ijpc_429_20. Epub 2021 Feb 17. PMID: 34035634; PMCID: PMC8121233 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8121233/
Friedel M, B. Richard, Boonen S, Tonon C, De Terwangne B, Bellis D, Mevisse M, Fonteyne C, Jaspard M, Schruse M, Harding R, Downing J, Namisango E, Degryse JM, Aujoulat I. Face and Content Validity, Acceptability, and Feasibility of the Adapted Version of the Children's Palliative Outcome Scale: A Qualitative Pilot Study. J Palliat Med. 2021 Feb; 24(2):181-188. Doi: 10.1089/jpm.2019.0646. Epub 2020 Jul 15. PMID: 32679002. https://kclpure.kcl.ac.uk/portal/en/publications/face-and-content-validity-acceptability-and-feasibility-of-the-adapted-version-of-the-childrens-palliative-outcome-scale(3711e7ee-1a9b-4e66-a512-2619ab9c0a6a)/export.html
Namisango E, Ramsey L, Dandadzi A, Okunade K, Ebenso B, Allsop MJ. Data and information needs of policymakers for palliative cancer care: a multi-country qualitative study. BMC Med Inform Decis Mak. 2021 Jun 15; 21(1):189. Doi: 10.1186/s12911-021-01555-1. PMID: 34130668; PMCID: PMC8204555. https://pubmed.ncbi.nlm.nih.gov/34130668/
Otu A, Effa E, Meseko C, Cadmus S, Ochu C, Athingo R, Namisango E, Ogoina D, Okonofua F, Ebenso B. Africa needs to prioritize One Health approaches that focus on the environment, animal health and human health. Nat Med. 2021 Jun; 27(6):943-946. Doi: 10.1038/s41591-021-01375-w. PMID: 34017135 https://pubmed.ncbi.nlm.nih.gov/34017135/
Harding R, Carrasco JM, Serrano-Pons J, Lemaire J, Namisango E, Luyirika E, Immanuel T, Paleri AK, Mathews L, Chifamba D, Mupaza L, Martínez CL, Zirimenya L, Bouësseau MC, Krakauer EL. Design and Evaluation of a Novel Mobile Phone Application to Improve Palliative Home-Care in Resource-Limited Settings. J Pain Symptom Manage. 2021 Jul; 62(1):1-9. Doi: 10.1016/j.jpainsymman.2020.09.045. Epub 2020 Nov 24. PMID: 33246073. https://europepmc.org/article/med/33246073
Adejoh SO, Boele F, Akeju D, Dandadzi A, Nabirye E, Namisango E, Namukwaya E, Ebenso B, Nkhoma K, Allsop MJ. The role, impact, and support of informal caregivers in the delivery of palliative care for patients with advanced cancer: A multi-country qualitative study. Palliat Med. 2021 Mar; 35(3):552-562. Doi: 10.1177/0269216320974925. Epub 2020 Dec 23. PMID: 33353484; PMCID: PMC7975852 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7975852/
Boufkhed S, Namisango E, Luyirika E, Sleeman KE, Costantini M, Peruselli C, Normand C, Higginson IJ, Harding R. Preparedness of African Palliative Care Services to Respond to the COVID-19 Pandemic: A Rapid Assessment. J Pain Symptom Manage. 2020 Dec; 60(6):e10-e26. Doi: 10.1016/j.jpainsymman.2020.09.018. Epub 2020 Sep 16. PMID: 32949761; PMCID: PMC7493734. https://pubmed.ncbi.nlm.nih.gov/32949761/
McNeil, M.J., Namisango E., Hunt, J., Powell, R.A. and Baker, J.N., 2020. Grief and bereavement in parents after the death of a child in low-and middle-income countries. Children, 7(5), p.39. https://www.researchgate.net/publication/341127031_Grief_and_Bereavement_in_Parents_After_the_Death_of_a_Child_in_Low-_and_Middle-Income_Countries
Krause R, Nyakabau A, Gwyther LG, Luyirika E, Kaasa S. Calling for advocacy, education and public policy actions on pain control for patients with cancer in Africa. ESMO Open. 2020 Aug; 5(4):e000757. Doi: 10.1136/esmoopen-2020-000757. PMID: 32826300; PMCID: PMC7445337. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7445337/
Mollica MA, Mayer DK, Oeffinger KC, Kim Y, Buckenmaier SS, Sivaram S, Muha C, Taib NA, Andritsch E, Asuzu CC, Bochis OV, Diaz S, Trill MD, Garcia PJ, Grassi L, Uchitomi Y, Shaikh AJ, Jefford M, Lee HJ, Johansen C, Luyirika E, Maher EJ, Mallillin MMB, Maniragaba T, Mehnert-Theuerkauf A, Pramesh CS, Siesling S, Spira O, Sussman J, Tang L, Hai NV, Yalcin S, Jacobsen PB. Follow-Up Care for Breast and Colorectal Cancer across the Globe: Survey Findings from 27 Countries. JCO Glob Oncol. 2020 Sep; 6:1394-1411. Doi: 10.1200/GO.20.00180. PMID: 32955943; PMCID: PMC7529533. https://minerva-access.unimelb.edu.au/handle/11343/277751
Tonia C. Onyeka, Nneka Iloanusi, Eve Namisango, Justus U. Onu, Kehinde S. Okunade, Alhassan Datti Mohammed, Muktar A. Gadanya, Abubakar U. Nagoma, Samuel Ojiakor, Chukwudi Ilo, Okey Okuzu, Chinelo Oduche, Ngozi Ugwu, Matthew J. Allsop. Project OPUS: Development and evaluation of an electronic platform for pain management education of medical undergraduates in resource-limited settings. PLoS One. 2020; 15(12): e0243573. Published online 2020 Dec 10. doi: 10.1371/journal.pone.0243573
Radbruch L, De Lima L, Knaul F, Wenk R, Ali Z, Bhatnaghar S, Blanchard C, Bruera E, Buitrago R, Burla C, Callaway M, Munyoro EC, Centeno C, Cleary J, Connor S, Davaasuren O, Downing J, Foley K, Goh C, Gomez-Garcia W, Harding R, Khan QT, Larkin P, Leng M, Luyirika E, Marston J, Moine S, Osman H, Pettus K, Puchalski C, Rajagopal MR, Spence D, Spruijt O, Venkateswaran C, Wee B, Woodruff R, Yong J, Pastrana T. Redefining Palliative Care-A New Consensus-Based Definition. J Pain Symptom Manage. 2020 Oct; 60(4):754-764. Doi: 10.1016/j.jpainsymman.2020.04.027. Epub 2020 May 6. PMID: 32387576; PMCID: PMC8096724 https://pubmed.ncbi.nlm.nih.gov/32387576/
Harding R, Carrasco JM, Serrano-Pons J, Lemaire J, Namisango E, Luyirika E, Immanuel T, Paleri AK, Mathews L, Chifamba D, Mupaza L, Martínez CL, Zirimenya L, Bouësseau MC, Krakauer EL. Design and Evaluation of a Novel Mobile Phone Application to Improve Palliative Home-Care in Resource-Limited Settings. J Pain Symptom Manage. 2021 Jul; 62(1):1-9. Doi: 10.1016/j.jpainsymman.2020.09.045. Epub 2020 Nov 24. PMID: 33246073. https://europepmc.org/article/med/33246073
Onyeka TC, Iloanusi N, Namisango E, Onu JU, Okunade KS, Mohammed AD, Gadanya MA, Nagoma AU, Ojiakor S, Ilo C, Okuzu O, Oduche C, Ugwu N, Allsop MJ. Project OPUS: Development and evaluation of an electronic platform for pain management education of medical undergraduates in resource-limited settings. PLoS One. 2020 Dec 10; 15(12):e0243573. Doi: 10.1371/journal.pone.0243573. PMID: 33301477; PMCID: PMC7728241. https://europepmc.org/article/pmc/7728241
Loth CC, Namisango E, Powell RA, Pabst KH, Leng M, Hamada M, Radbruch L. "From good hearted community members we get volunteers" - an exploratory study of palliative care volunteers across Africa. BMC Palliat Care. 2020 Apr 14; 19(1):48. Doi: 10.1186/s12904-020-00545-w. PMID: 32290860; PMCID: PMC7158085 https://bmcpalliatcare.biomedcentral.com/articles/10.1186/s12904-020-00545-w
Namisango E, Bristowe K, Murtagh FE, Downing J, Powell RA, Abas M, Lohfeld L, Ali Z, Atieno M, Haufiku D, Guma S, Luyirika EB, Mwangi-Powell FN, Higginson IJ, and Harding R. Towards person-centred quality care for children with life-limiting and life-threatening illness: Self-reported symptoms, concerns and priority outcomes from a multi-country qualitative study. Palliat Med. 2020 Mar; 34(3):319-335. Doi: 10.1177/0269216319900137. Epub 2020 Feb 21. PMID: 32081084 https://europepmc.org/article/med/32081084
McNeil MJ, Namisango E, Hunt J, Powell RA, Baker JN. Grief and Bereavement in Parents after the Death of a Child in Low- and Middle-Income Countries. Children (Basel). 2020 May 1; 7(5):39. Doi: 10.3390/children7050039. PMID: 32369937; PMCID: PMC7278603. https://pubmed.ncbi.nlm.nih.gov/32369937/
Evans CJ, Ison L, Ellis-Smith C, Nicholson C, Costa A, Oluyase AO, Namisango E, Bone AE, Brighton LJ, Yi D, Combes S, Bajwah S, Gao W, Harding R, Ong P, Higginson IJ, Maddocks M. Service Delivery Models to Maximize Quality of Life for Older People at the End of Life: A Rapid Review. Milbank Q. 2019 Mar; 97(1):113-175. Doi: 10.1111/1468-0009.12373. PMID: 30883956; PMCID: PMC6422603. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6422603/
Bates MJ, Namisango E, Tomeny E, Muula A, Squire SB, Niessen L. Palliative care within universal health coverage: the Malawi Patient-and-Carer Cancer Cost Survey. BMJ Support Palliat Care. 2019 Oct 3: bmjspcare-2019-001945. Doi: 10.1136/bmjspcare-2019-001945. Epub ahead of print. PMID: 31582382 https://pubmed.ncbi.nlm.nih.gov/31582382/
Namisango E, Bristowe K, Allsop MJ, Murtagh FEM, Abas M, Higginson IJ, Downing J, Harding R. Symptoms and Concerns Among Children and Young People with Life-Limiting and Life-Threatening Conditions: A Systematic Review Highlighting Meaningful Health Outcomes. Patient. 2019 Feb; 12(1):15-55. Doi: 10.1007/s40271-018-0333-5. PMID: 30361884. https://pubmed.ncbi.nlm.nih.gov/30361884/
Allsop MJ, Namisango E, Powell RA. A survey of mobile phone use in the provision of palliative care services in the African region and priorities for future development. J Telemed Telecare. 2019 May; 25(4):230-240. Doi: 10.1177/1357633X18767187. Epub 2018 Apr 11. PMID: 29635966. https://pubmed.ncbi.nlm.nih.gov/29635966/
Olagunju AT, Fadipe B, Buraimoh RW, Ale OK, Umeizudike TI, Ogbolu RE, Buyinza N, Bayuo J, Mutedzi B, Nkhoma K, Namisango E, Bristowe K, Yi D, Downing J, Aina OF, Adeyemi JD, Murtagh FEM, Harding R. A longitudinal cohort study of symptoms and other concerns among Nigerian people with stages 3-5 chronic kidney diseases: study protocol. Ann Palliat Med. 2019 Apr; 8(2):190-198. Doi: 10.21037/apm.2018.10.03. Epub 2018 Oct 17. PMID: 30525769. https://europepmc.org/article/med/30525769
Simms V, Downing J, Namisango E, Powell RA, Mwangi-Powell F, Higginson IJ, Harding R. Change in multidimensional problems and quality of life over three months after HIV diagnosis: a multicenter longitudinal study in Kenya and Uganda. BMC Infect Dis. 2019 Mar 12; 19(1):248. Doi: 10.1186/s12879-019-3855-0. PMID: 30871509; PMCID: PMC6419372. https://bmcinfectdis.biomedcentral.com/articles/10.1186/s12879-019-3855-0
Okunade K, Bashan Nkhoma K, Salako O, Akeju D, Ebenso B, Namisango E, Soyannwo O, Namukwaya E, Dandadzi A, Nabirye E, Mupaza L, Luyirika E, Ddungu H, Chirenje ZM, Bennett MI, Harding R, Allsop MJ. Understanding data and information needs for palliative cancer care to inform digital health intervention development in Nigeria, Uganda and Zimbabwe: protocol for a multi country qualitative study. BMJ Open. 2019 Oct 31; 9(10):e032166. Doi: 10.1136/bmjopen-2019-032166. PMID: 31676657; PMCID: PMC6830840. https://eprints.whiterose.ac.uk/153268/
Namisango E., Bristowe, K., Allsop, M.J., Murtagh, F.E., Abas, M., Higginson, I.J., Downing, J. and Harding, R., 2019. Symptoms and concerns among children and young people with life-limiting and life-threatening conditions: a systematic review highlighting meaningful health outcomes. The Patient-Patient-centred Outcomes Research, 12(1), pp.15-55. https://pubmed.ncbi.nlm.nih.gov/30361884/
Evans, C.J., Ison, L., Ellis‐smith, C.L.A.R.E., Nicholson, C., Costa, A., Oluyase, A.O., Namisango E., Bone, A.E., Brighton, L.J., Yi, D. and Combes, S., 2019. Service delivery models to maximize quality of life for older people at the end of life: a rapid review. The Milbank Quarterly, 97(1), pp.113-175 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6422603/
Harding, R., Bristowe, K., Downing, J., Gwyther, L., Luyirika E., Meiring, M., & Ratshikana-Moloko, M. (2019). Policies on Palliative Care in Different Parts of the World. Textbook of Palliative Care, 89-104.http://link.springer.com/10.1007/978-3-319-77740-5_7
Rhee, John Y., Eduardo Garralda, Eve Namisango, Emmanuel Luyirika, Liliana de Lima, Richard A. Powell, Jesús López-Fidalgo et al. "Brief Methodological Reports." (2018).
Centeno C, Sitte T, de Lima L, Alsirafy S, Bruera E, Callaway M, Foley K, Luyirika E, Mosoiu D, Pettus K, Puchalski C, Rajagopal MR, Yong J, Garralda E, Rhee JY, Comoretto N. White Paper for Global Palliative Care Advocacy: Recommendations from a PAL-LIFE Expert Advisory Group of the Pontifical Academy for Life, Vatican City. J Palliat Med 2018; 21(10): 1389-97. https://dadun.unav.edu/handle/10171/56051
Rhee JY Garralda E, Namisango E, Luyirika E, de Lima L, Powell RA López-Fidalgo J Centeno C. An Analysis of Palliative Care Development in Africa: A Ranking Based on Region-Specific Macro-indicators. J Pain Symptom Manage. 2018 Aug; 56(2):230-238. Doi: 10.1016/j.jpainsymman.2018.05.00 https://pubmed.ncbi.nlm.nih.gov/29772280/
J Downing; G Kivumbi; E Nabirye; A Ojera; R Namwanga; R Katusabe; M Dusabimana; K Kalema; B Yayeri; A Apollo; M Batuli; C Komunda; R Nabukalu; J Mwesige; M Sekyondwa; M Kasirye; JO Amoris; E Nandutu; W Acuda; D Adong; E Luyirika; E Namisango; F Kiyange; R Kiwanuka; J Amandua; J Logan; E Haraldsdottir; B Moback; C Lesley; L Grant; M Leng. An evaluation of palliative care nurse prescribing: a mixed methods study in Uganda. BMJ Supportive & Palliative Care. 8(Suppl_1):A6, MAR 2018 https://spcare.bmj.com/content/8/Suppl_1/A6.1
Pettus K, De Lima L, Maurer M, Husain A, Connor S, Torode J, Ling J, Downing J, Rajagopal MR, Radbruch L, Pastrana T, Luyirika EB, Goh C, Marston J, Cleary J. Ensuring and Restoring Balance on Access to Controlled Substances for Medical and Scientific Purposes: Joint Statement from Palliative Care Organizations. J Pain Palliat Care Pharmacother 2018: 1-5.
Namisango Eve , Katherine Bristowe, Matthew Allsop, Fliss EM Murtagh, Melanie Abas Irene J Higginson, Julia Downing ,Richard Harding. Symptoms and concerns among children and young people with life-limiting and life-threatening conditions: A systematic review highlighting meaningful health outcomes The Patient: Patient-Centred Outcomes Research- 2018 https://pubmed.ncbi.nlm.nih.gov/30361884/
Downing J, Namisango E, Harding R. Outcome measurement in paediatric palliative care: lessons from the past and future developments. Ann Palliat Med 2018.https://pubmed.ncbi.nlm.nih.gov/30180720/
Fraser, BA; Powell RA; Faith N. Mwangi-Powell, FN; Namisango E, Hannon B; Zimmermann C. Palliative Care Development in Africa: Lessons From Uganda and Kenya. Journal of Global Oncology 2018. https://pubmed.ncbi.nlm.nih.gov/30241205/
Rhee JY Garralda E, Namisango E, Luyirika E, de Lima L, Powell RA López-Fidalgo J Centeno C. Developing Macro-indicators of Palliative Care Development in Africa: A Process with In-Country and International Experts. Journal of Palliative Medicine Vol. 21, No. 31 Mar 2018
Krakauer EL, Kwete X, Verguet S, Arreola-Ornelas H, Bhadelia A, Mendez O, Rodriguez nM, Ali Z, Allende S, Cleary JF, Connor S, Danforth K, Lima Ld, Gwyther L, Hamzah E, Jamison DT, Khanh QT, Kumar S, Luyirika E, Merriman A, Mpanumusingo E, Nevzorova D, Ntizimira C, Osman H, Perez-Cruz P, Rajagopal M. R., Radbruch L, Spence D, Stoltenberg M, Tapela N, Watkins DA, Knaul F. Palliative Care and Pain Control. In: Jamison DT, Gelband H, Horton S, Jha P, Laxminarayan R, Mock CN, Nugent R, editors. Disease Control Priorities: Improving Health and Reducing Poverty. 3rd edition. Washington (DC): The International Bank for Reconstruction and Development / The World Bank; 2017 Nov 27. Chapter 12.
Rhee JY, Garralda E, Torrado C, Blanco S, Ayala I, Namisango E, Luyirika E, de Lima L, Powell RA, López-Fidalgo J, Cnteno C. Publications on Palliative Care Development Can Be Used as an Indicator of Palliative Care Development in Africa. J Palliat Med. 2017 Dec; 20(12):1372-1377. Doi: 10.1089/jpm.2017.0168. Epub 2017 Jun 29. https://pubmed.ncbi.nlm.nih.gov/28661713/
Building Integrated palliative care prorams and services
APCA was a contributing organization and several APCA staff were authors.
http://www.thewhpca.org/resources/building-integrated-palliative-care-programs-and-services
Rhee JY, Garralda E, Torrado C, Blanco S, Ayala I, Namisango E, Luyirika E, de Lima L, Powell RA, López-Fidalgo J, Centeno C. Publications on Palliative Care Development Can Be Used as an Indicator of Palliative Care Development in Africa. J Palliat Med. 2017 Jun 29.
doi: 10.1089/jpm.2017.0168. [Epub ahead of print]
Prof Dr Anne Merriman, Eve Namisango, Dr Eddie Mwebesa, Fatia Kiyange, Dr Emmanuel Luyirika, THE STATE OF PALLIATIVE CARE IN AFRICA 2016. Submitted to Cancer:
Namisango E, Ntege C, Kiyange F, Luyirka E, Allosp M. Strengthening pharmaceutical systems for palliative care services in resource limited settings: piloting a mHealth application across a rural and urban setting in Uganda- 2016 http://bmcpalliatcare.biomedcentral.com/articles/10.1186/s12904-016-0092-9
Moens K, Siegert RJ, Taylor S, Namisango E, Harding R. Symptom Clusters in People Living with HIV Attending Five Palliative Care Facilities in Two Sub-Saharan African Countries: A Hierarchical Cluster Analysis.; ENCOMPASS; EURO IMPACT.
PLoS One. 2015 May 12; 10(5):e0126554. Doi: 10.1371/journal.pone.0126554. Collection 2015.
Free PMC Article http://www.ncbi.nlm.nih.gov/pubmed/25966420
Namisango E, Harding R, Katabira ET, Siegert RJ, Powell RA, Atuhaire L, Moens K, Taylor S. A novel symptom cluster analysis among ambulatory HIV/AIDS patients in Uganda. AIDS Care. 2015 Mar 18:1-10. http://www.tandfonline.com/doi/abs/10.1080/09540121.2015.1020749?journalCode=caic20#.VhYo6t-qqko
Allsop MJ, Powell RA, Namisango E. The state of mHealth development and use by palliative care services in sub-Saharan Africa: a systematic review of the literature and visual framework for progression. BMJ supportive and palliative care https://pubmed.ncbi.nlm.nih.gov/27207721/
Namisango E, Harding R, Atieno M, Powell RA, Ali Z, Meiring M, Ivy Kasirye, Ssengooba J, Downing J . Cross-national validation of an outcome measure for children with life-limiting and life-threatening illness: the APCA African Children’s Palliative Outcome Scale (C-POS) submitted to Journal of paediatrics manuscript available on request
Rawlinson, Fm ; Gwyther, L ; Kiyange, F ; Luyirika E ; Meiring, M ; Downing, J
The current situation in education and training of health-care professionals across Africa to optimise the delivery of palliative care for cancer patients. ecancer 8 492 / DOI: 10.3332/ecancer.2014.492
https://pubmed.ncbi.nlm.nih.gov/25624873/
Harding R, Selman L, Ali Z, Powell RA, Namisango E, Mwangi-Powell F, Gwyther L, Nancy Gikaara, Higginson IJ Siegert RJ: Wellbeing among sub-Saharan African patients with advanced HIV and/or cancer: an international multi-centered study comparing two outcome measures. Health and Quality of Life Outcomes 2014
http://www.hqlo.com/content/12/1/80
Harding R, Namisango E, Powell RA, Merriman A, Gikaara N, Ali Z, Higginson IJ. Palliative care-related self-report problems among cancer patients in East Africa: a two country study 1.Journal of Supportive Care in Cancer. 2014 http://link.springer.com/article/10.1007%2Fs00520-014-2301-5
Siegert R, Selman L, Higginson IJ, Ali Z, Powell RA, Namisango E, Mwangi-Powell F, Gwyther L, Gikaara N, Harding R. A psychometric evaluation of the Functional Assessment of Chronic Illness Therapy – Palliative Care (FACIT-Pal) Scale with palliative care samples in three African countries. J Pain Symptom Manage. 2014 http://www.ncbi.nlm.nih.gov/pubmed/24742786
Downing J, Gomes B, Gikaara N, Munene G, Daveson BA, Powell RA, Mwangi-Powell FN, Higginson IJ, Harding R on behalf of Project PRISMA. Public preferences and priorities for end-of-life care in Kenya: a population-based street survey. BMC Palliative Care 2014 [http://www.biomedcentral.com/1472-684X/13/4]
Penfold S, Namisango E, Banga G, Kataike J, Atieno M, Munene G, Moreland S, Downing J, Higginson IJ, Harding R, Gikaara N, Simms V, Mwangi-Powell F, Powell RA. The HIV Basic Care Package: Where is it available and who receives it? Findings from a mixed methods evaluation in Kenya and Uganda. AIDS Care 2014 http://www.ncbi.nlm.nih.gov/pubmed/?term=Penfold+S%2C+Namisango+E%2C+Banga+
Harding R, Simms V, Penfold S, Downing J, Powell RA, Mwangi-Powell F, Namisango E, Moreland S, Gikaara N, Atieno M, Kataike J, Nsubuga C, Munene G, Banga G, Higginson IJ. The presence of CD4 counts for the management of HIV patients in East Africa: a multicentred study.6.AIDS Care. 2014 http://www.ncbi.nlm.nih.gov/pubmed/24099416
FM Rawlinson, E Luyirika Collaboration across continents to produce e-learning for palliative care education in Sub Saharan Africa. Ecancer 8 ed36 / DOI: 10.3332/ecancer.2014.ed36 http://ecancer.org/journal/editorial/36-collaboration-across-continents-to-produce-e-learning-for-palliative-care-education-in-sub-saharan-africa.php
Powell RA, Harding R, Namisango E, Katabira E, Gwyther L, Radbruch L, Murray SA, El-ansary M, Leng M, Ajayi IO, Blanchard C, Kariuki H, Kasirye I, Namukwaya E, Gafer N, Casarett D, Atieno M, Mwangi-Powell FN. Palliative care research in Africa: Consensus building for a prioritized agenda. (Special Article). Journal of Pain and Symptom Management. 2014 http://www.ncbi.nlm.nih.gov/pubmed/23870840
Powell RA, Radbruch L, Mwangi-Powell F, and Cleary J, Cherny N: Failing to numb the pain. South African Medical Journal. 2014 http://www.ncbi.nlm.nih.gov/pubmed/24742786
Harding R, Selman L, Ali Z, Powell RA, Namisango E, Mwangi-Powell F, Liz Gwyther, Gikaara N, I Higginson IJ, Siegert RJ. Wellbeing among sub-Saharan African patients with advanced HIV and/or cancer: an international multicentred study comparing two outcome measures. . Health and Quality of Life Outcomes 2014, 12:80 doi:10.1186/1477-7525-12-80 http://www.hqlo.com/content/pdf/1477-7525-12-80.pdf
Namisango E, Powell RA, Kariuki H, Harding R, Luyirika E, Mwangi-Powell F. Palliative Care Research in Eastern Africa. European Journal of Palliative Care. 2013https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6180772/
Selman L, Simms V, Penfold S, Powell RA, Mwangi-Powell F, Downing J, Gikaara N, Munene G, Higginson IJ, Harding R. 'My dreams are shuttered down and it hurts lots' - a qualitative study of palliative care needs and their management by HIV outpatient services in Kenya and Uganda. BMC Palliative Care. 2013 http://www.biomedcentral.com/1472-684X/12/35
Namisango E, Harding R. Is symptom burden associated with treatment status and disease stage among adult HIV outpatients in East Africa? Palliative Medicine. 2013. Doi: 10.1089/jpm.2013.0291. http://www.ncbi.nlm.nih.gov/pubmed/24359205
Harding R, Simms V, Penfold S, Downing J, Powell RA, Mwangi-Powell F, Namisango E, Moreland S, Gikaara N, Atieno M, Kataike J, Nsubuga C, Munene G, Banga G, Higginson IJ. Availability of essential drugs for managing HIV-related pain and symptoms within 120 PEPFAR-funded health facilities in East Africa: A cross-sectional survey with onsite verification. Palliative Medicine. 2013 http://www.ncbi.nlm.nih.gov/pubmed/23885009
Powell RA, Namisango E, Gikaara N, Moyo S, Mwangi-Powell FN, Gomes B, Harding R. Public priorities and preferences for end-of-life care in Namibia. Doi: 0.1016/j.jpainsymman.2013.04.004.http://www.ncbi.nlm.nih.gov/pubmed/23870841
Mwangi-Powell FN, Powell RA, Harding R. Models of delivering palliative and end-of-life care in Sub-Saharan Africa: A narrative review of the evidence. Current Opinion in Supportive & Palliative Care. 2013 http://www.ncbi.nlm.nih.gov/pubmed/?term=Mwangi-
Simms VM, Gikaara N, Munene G, Atieno M, Kataike J, Nsubuga C, Banga G, Namisango E, Fayers P, Powell RA, Higginson IJ, Harding R. Multidimensional patient-reported problems within two weeks of HIV diagnosis in East Africa: A multicentre observational study. PLoS One. 2013. 8(2): e57203 http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3576340/
Harding R, Selman L, Simms VM, Penfold S, Agupio G, Dinat N, Downing J, Gwyther L, Ikin B, Mashao T, Mmoledi K, Sebuyira LM, Moll T, Mwangi-Powell F, Namisango E, Powell RA, Walkey FH, Higginson IJ, Siegert RJ. How to analyse palliative care outcome data for patients in Sub-Saharan Africa: an international, multicenter, factor analytic examination of the APCA African POS. J Pain Symptom Manage. 2013 http://www.ncbi.nlm.nih.gov/pubmed/23017619
Harding R, Selman S, Powell RA, Namisango E, Downing J, Meriman A, Ali Z, Gikaara N, Gwyther L, Higginson IJ. Research into palliative care in sub-Saharan Africa. Lancet Oncology. 2013. http://www.ncbi.nlm.nih.gov/pubmed/?term=HARDING
Simms VM, Gikaara N, Munene G, Atieno M, Kataike J, Nsubuga C, Banga G, Namisango E, Fayers P, Powell RA, Higginson IJ, HARDING R. Multidimensional Patient-Reported Problems Within Two Weeks of HIV Diagnosis in East Africa: a Multicentre Observational Study. PLoS One. 2013, Journal of Pain and Symptom Management. https://kclpure.kcl.ac.uk/portal/en/publications/multidimensional-patientreported-problems-within-two-weeks-of-hiv-diagnosis-in-east-africa(1780157a-13a8-4cc9-83e2-2384da65ef4f).html
Powell RA, Harding R, Namisango E, Katabira E, Gwyther L, Radbruch L, Murray S, El-Ansary M, Ajayi IO, Mwangi-Powell FN. Palliative care research in Africa: An Overview. European Journal of Palliative Care. 2013. https://pubmed.ncbi.nlm.nih.gov/23561750/
Mwangi-Powell FN, Powell RA, Harding R. Models of delivering palliative and end-of-life care in sub-Saharan Africa: a narrative review of the evidence. Curr Opin Support Palliat Care. Doi: 10.1097/SPC.0b013e328360f835. Review. http://www.ncbi.nlm.nih.gov/pubmed/23572158
McCleary-Sills J, Kanesathasan A, Brakarsh J, Vujovic M, Kgethi Dlamini MeD c , Namisango E, Nasaba R, Fritz K. Foundation for the Future: Meeting the Psychosocial Needs of Children Living With HIV in South Africa and Uganda. Journal of HIV/AIDS & Social Services. 201 http://www.tandfonline.com/doi/abs/10.1080/15381501.2012.749818?af=R#.U6Q-u_mSw1I
Krakauer E, Callaway M, Foley K, De Lima L, Mwangi-Powell F, Radbruch L: No visa for health: Schengen and North American countries block medical education for clinicians from poor countries. http://eapcnet.wordpress.com/ 30.5.13
Downing J, Namisango E, Kiyange F, Luyirika E, Gwyther L, Enarson S, Kampi J, Sithole Z, Kemigisha-Ssali E, and Masclee M, Mukasa I. The net effect: spanning diseases, crossing borders—highlights from the fourth triennial APCA conference and annual HPCA conference for palliative care. Ecancer 7 371 / DOI: 10.3332/ecancer.2013.371 http://ecancer.org/journal/7/full/371-the-net-effect-spanning-diseases-crossing-borders-highlights-from-the-fourth-triennial-apca-conference-and-annual-hpca-conference-for-palliative-care.php
Cleary J, Powell RA, Munene G, Mwangi-Powell FN, Luyirika E, Kiyange F, Merriman A, Scholten W, Radbruch L, Torode J, Cherny NI. Formulary availability and regulatory barriers to accessibility of opioids for cancer pain in Africa: a report from the Global Opioid Policy Initiative (GOPI). Annals of Oncology 24 (2013) xi14-xi23 http://www.ncbi.nlm.nih.gov/pubmed/24285225
Downing J, Atieno M, Powell RA, Ali Z, Marston J, Meiring M, Ssengooba J, Williams S, Mwangi-Powell FN, Harding R and the APCA AIDSTAR Project Advisory Group. A palliative care outcome measure for children in sub-Saharan Africa: Early development findings. European Journal of Palliative Care. 2012 https://kclpure.kcl.ac.uk/portal/en/publications/a-palliative-care-outcome-measure-for-children-in-subsaharan-africa(d4e39eff-379b-4566-bc54-fa2e49099d1f)/export.html
Downing J, Gikaara N, Gomes B, Daveson BA, Higginson IJ, Harding R. Public opinion on preferences and priorities for end-of-life care in sub-Saharan Africa: piloting a novel method of street surveying. BMJ Supportive & Palliative Care 2012 http://www.ncbi.nlm.nih.gov/pubmed/24529217
Downing J, Ojing M, Powell RA, Ali Z, Marston J, Meiring M, Ssengooba J, Williams S, Mwangi-Powell F, Harding R. A palliative care outcome measure for children in sub-Saharan Africa: Early development findings. European Journal of Palliative Care 2012
Downing J, Simon ST, Mwangi-Powell FN, Benalia H, Daveson BA,Higginson IJ, Harding R, Bausewein C, Project PRISMA. Outcomes 'Out of Africa': the selection and implementation of outcome measures for palliative care in Africa. BMC Palliative Care 2012 http://www.biomedcentral.com/1472-684X/11/1
Harding R, Selman L, Agupio G, Dinat N, Downing J, Gao W, Gwyther L, Mashao T, Mmoledi K, Moll A, Sebuyira LM, Ikin B, Higginson IJ. Intensity and correlates of multidimensional problems in HIV patients receiving integrated palliative care in sub-Saharan Africa. Sexually Transmitted Infections 2012 http://www.ncbi.nlm.nih.gov/pubmed/22896679
Namisango E, Harding R, Atuhaire L, Ddungu H, Katabira E, Muwanika FR, Powell RA. Pain among ambulatory HIV/AIDS patients: Multicentre study of prevalence, intensity, associated factors and effect. Journal of Pain. 2012 http://www.ncbi.nlm.nih.gov/pubmed/?term=Namisango+E%2C+HARDING+R%2C+Atuhaire+L%2C+
Harding R, Selman L, Agupio G, Dinat N, Downing J, Gwyther L, Mashao T, Mmoledi K, Moll T, Sebuyira LM, Ikin B, Higginson IJ. Prevalence, burden, and correlates of physical and psychological symptoms among HIV palliative care patients in sub-Saharan Africa: an international multicenter study. Journal of Pain Symptom Management. 2012 http://www.ncbi.nlm.nih.gov/pubmed/22658471
Eve Namisango, Richard A Powell. The 7th World Research Congress of the EAPC: through the lens of an early African researcher. European Journal of Palliative Care, 2012 http://www.eapcnet.eu/LinkClick.aspx?fileticket=nOLqt1pj92U%3D&tabid...
Harding R, Selman L, Agupio G, Dinat N, Downing J, Gao W, Gwyther L, Mashao T, Mmoledi K, Moll A, Mpanga Sebuyira L, Ikin B, Higginson IJ. Intensity and correlates of multidimensional problems in HIV patients receiving integrated palliative care in sub-Saharan Africa. Sex Transm Infect. 2012. Doi: 10.1136/sextrans-2011-050460. http://www.ncbi.nlm.nih.gov/pubmed/22896679
Downing J, Simon ST, Mwangi-Powell FN, Benalia H, Daveson BA, HigginsonIJ, Harding R, Bausewein C and Project PRISMA BMC palliative care . Outcomes 'out of Africa': the selection and implementation of outcome measures for palliative care in Africa. BMC Palliative Care 2012, doi: 10.1186/1472-684X-11-1 http://www.biomedcentral.com/1472-684X/11/1
Powell RA, Mwangi-Powell FN, Kiyange F, and Radbruch L, Harding R. Palliative care development in Africa: How we can provide enough quality care? BMJ Supportive and Palliative Care, 2011 1 http://spcare.bmj.com/content/1/2/113.extract
Luyirika E, Kikule E, et al Meeting the Challenges of Disability and HIV in East Africa. JAIDS Journal of Acquired Immune Deficiency Syndromes
Issue: Volume 57(3), 1 July 2011, pp e68-e69 http://ovidsp.uk.ovid.com/sp-3.
Bausewein C, Simon ST, Benalia H, Downing J, Mwangi-Powell FN, Daveson BA, Harding R1, Higginson IJ, and PRISMA. Implementing patient reported outcome measures (PROMs) in palliative care - users' cry for help. Health and Quality of Life Outcomes 2011, 9:27 doi: 10.1186 http://www.hqlo.com/content/9/1/27
Selman LE, Higginson IJ, Agupio G, Dinat N, Downing J, Gwyther L, Mashao T, Mmoledi K, Moll T, Sebuyira LM, Ikin B, Harding R. Quality of life among patients receiving palliative care in South Africa and Uganda: a multi-centred study. 2011 Health Qual Life Outcomes. Doi: 10.1186/ http://www.ncbi.nlm.nih.gov/pubmed/21477274
Mwangi-Powell FN, Downing J, Ddungu H, Kiyange F, Powell RA & Baguma A (2010) Palliative care in Africa. In: Ferrell BR & Coyle N (Eds.) Textbook of Palliative Nursing, 3rd Edition. New York: Oxford University Press
Downing J, Mwangi-Powell F & Powell RA. Home-based palliative care in sub-Saharan Africa. Home Healthcare Nurse 2010http://www.researchgate.net/publication/44593100_Home-based_palliative_care_in_sub-Saharan_Africa
Harding R, Selman L, Agupio G, Dinat N, Downing J, Gwyther L, Mashao T, Mmoledi K, Moll T, Mpanga Sebuyira L, Panjatovic B, Higginson IJ. Validation of a core outcome measure for palliative care in Africa: The APCA African Palliative Outcome Scale. Health and Quality of Life Outcomes. 2010 http://www.hqlo.com/content/8/1/10
Harding R, Mwangi-Powell FN, Gwyther L, Dinat N, Powell RA. Brief Global Reports – How can we improve palliative care patient outcomes in low and middle income countries? Successful research approaches in sub-Saharan Africa. Journal of Pain and Symptom Management, 2010 http://www.ncbi.nlm.nih.gov/pubmed/20619209
Harding R, Simms V, Penfold S, McCrone P, Moreland S, Downing J, Powell RA, Mwangi-Powell F, Namisango E, Fayers P, Curtis S, Higginson IJ. Multi-centred mixed-methods PEPFAR HIV care & support public health evaluation: Study protocol. BMC Public Health. 2010 http://www.ncbi.nlm.nih.gov/pubmed/20920241
Mwangi-Powell F, Powell RA & Downing J. Palliative care: Why is it important in the HIV and AIDS response? OPENSPACE, 2010
Fatia Kiyange: Social work in palliative care in Africa: Progress in Palliative Care: Science and the Art of Caring. Volume 18, Issue 4, 2010
Selman L, Siegert RJ, Higginson IJ, Agupio G, Dinat N, Downing J, Gwyther L, Mashao T, Mmoledi K, Moll T, Sebuyira LM, Ikin B, and Harding R. The MVQOLI successfully captured quality of life in African palliative care: a factor analysis. Journal of Clinical Epidemiology. Doi: 10.1016/j.jclinepi.2010.12.013.
http://www.ncbi.nlm.nih.gov/pubmed/21474280
Downing J, Atieno M, Powell RA, Mwangi-Powell F. The development of the APCA African Children’s Palliative Outcome Scale. International Children’s Palliative Care Network: Network News, 2009
Harding R, Powell RA, Kiyange F, Downing J, Mwangi-Powell F. Provision of pain- and symptom-relieving drugs for HIV/AIDS in sub-Saharan Africa. J Pain Symptom Manage.doi: 10.1016/j.jpainsymman.2009. http://www.ncbi.nlm.nih.gov/pubmed/20685071
Selman L, Higginson IJ, Agupio G, Dinat N, Downing J, Gwyther L, Mashao T, Mmoledi K, Moll AP, Mpanga Sebuyira L, Panjatovic B, HARDING R. Meeting information needs of patients with incurable disease and their families in South Africa and Uganda: Multicentre qualitative study. British Medical Journal. 2009
Powell RA, Downing J, Ddungu H & Mwangi-Powell FN (2009) Pain history and pain assessment, pp.54-68. In: Patel NB & Kopf A (Eds.) Manual on Pain Management in Low-Resource Settings. Seattle, USA: International Association for the Study of Pain
Harding R, Powell RA, Downing J, Connor S, Mwangi-Powell F, Defilippi K, Cameron S, Garanganga E, Kikule E & Alexander C. Generating an African palliative care evidence base: The context, need, challenges and strategies. Journal of Pain and Symptom Management, 2008. http://www.ncbi.nlm.nih.gov/pubmed/?term=Harding+R%2C+Powell+RA%2C+Downing+J%2
Powell RA, Downing J, Radbruch L, Mwangi-Powell FN & Harding R. Advancing palliative care research in Africa: From Venice to Nairobi and beyond. Palliative Medicine 2008. http://www.ncbi.nlm.nih.gov/pubmed/?term=Powell+RA%2C+Downing+J%2C+Radbruch+L%
Powell RA & Mwangi-Powell FN. Improving palliative care in Africa: Selection, training, and retention of community-based volunteers is a priority. British Medical Journal 2008
Powell RA, Downing J, Harding R, Mwangi-Powell F & Connor S on behalf of the APCA M&E Group. Development of the APCA African Palliative Outcome Scale. Journal of Pain and Symptom Management, 2007 http://www.ncbi.nlm.nih.gov/pubmed/17280929
Harding R, Gwyther L, Powell FM. Treating HIV/AIDS patients until the end of life. J Acquir Immune Defic Syndr. 2007 http://www.ncbi.nlm.nih.gov/pubmed/17327759
Namisango E, Katabira E, Karamagi C, Baguma P. Validation of the Missoula-Vitas Quality-of-Life Index among patients with advanced AIDS in urban Kampala, Uganda. J Pain Symptom Manage. 2007 Feb; 33(2):189-202. http://www.ncbi.nlm.nih.gov/pubmed/17280924
Bikaako-Kajura W, Luyirika E, Purcell DW, Downing J, Kaharuza F, Mermin J, Malamba S, Bunnell R. Disclosure of HIV status and adherence to daily drug regimens among HIV-infected children in Uganda. AIDS Behav. 2006 Jul; 10(4 Suppl):S85-93. Doi: 10.1007/s10461-006-9141-3. PMID: 16791525. https://pubmed.ncbi.nlm.nih.gov/16791525/
