Preconference workshops
- The Education in Palliative and End-of-life Care (EPEC)-Pediatrics workshop (Physical at Mestil Hotel Only)
- Digital Health In Palliative Care (Physical and Virtual)
- Research Workshop (Virtual Only)
How to register for a preconference workshop
- Regsiter for the the APCA conference portal on this link https://africanpalliativecare.org/conference/manager/register.php
- If you have already registered for the conference, log on to the portal with your username and password on this link https://africanpalliativecare.org/conference/manager/login.php
- If you have not yet registered for the conference, verify you email address with the link sent to your email and proceed to log on to the conference portal on this link https://africanpalliativecare.org/conference/manager/login.php
- Go to Registrations and add a new registration. If you already registered for the conference, you can add just the desired preconference event otherwise fill in your personal information, add a preconference event and select a payment option.
- Go to the invoices tabs and complete the registration process with an online payment
Pre Conference Workshops APCA 2022
Day, Date and Time |
Workshop Title |
Session Chair |
Monday 22nd August 2022 |
EPEC Paediatric Palliative Care workshop (Physical at Mestil Hotel Only) |
Prof Julia Downing |
Tuesday 23rd August 2022 |
EPEC Paediatric Palliative Care workshop (Physical at Mestil Hotel Only) |
Prof Julia Downing |
Research workshop (Physical and Virtual) |
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Digital Health workshop (Virtual Only) |
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Workshops During the Conference |
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Friday 26th August 2022 11:30 – 13:00 hours |
Partnerships: building strong cross-cultural relationships despite – or because of – challenges and disagreements |
Lacey Ahern |
Workshop on the use of videos and films in palliative care education |
Randi Diamond Charles Campion-Smith |
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Leaving no one behind: Learning, developing, and strengthening palliative care in humanitarian settings |
Joan Masrton Ann Toh |
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Palliative and supportive care in end-stage kidney disease |
Rene Krause Peace Bagasha |
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Learning from the Past: Why the history of Palliative Care in Africa is key to the Discipline’s Sustainability |
Shelley Enarson Eve Namisango |
A: The Education in Palliative and End-of-life Care (EPEC)-Pediatrics workshop (Physical at Mestil Hotel Only)
Pre-conference workshop-duration is two days
Pre-Conference Day 1: Monday 22nd August 2022
Pre-Conference Day 2: Tuesday 23rd August 2022
The World Health Organization defines palliative care as the prevention and relief of physical, developmental, psychosocial, and spiritual suffering of patients and their families facing life-threatening illness. Early integration of palliative care is recognized by the WHO as an “ethical responsibility” for children with life-threatening illness regardless of resource constraints. Worldwide, more than 21 million children would benefit from pediatric palliative care (PPC) services, however, access to PPC is limited, especially in low- and middle-income countries (LMICs).
While there are structural barriers to PPC delivery in resource-constrained settings, lack of formal education in PPC remains a significant challenge. The Education in Palliative and End-of-life Care (EPEC)-Pediatrics curriculum, a 24-module course addressing principles of PPC including pain and symptom management, grief and bereavement, and communication. We will be creating and delivering a Sub-Saharan Africa-specific EPEC-Pediatrics end-user course to teach PPC principles to clinicians supplemented with a participant needs assessment.”
Proposed programme outline
Monday morning 8:30-9 – registration and breakfast
- WELCOME and introductions – a plenary large group (1 hour) – 9-10 am
- What is Paediatric PC and Why does it matter: An Overview – a plenary large group (1 hour) – 10-11 am Break – 15 minutes
- General Symptom management considerations and Management of Respiratory Symptoms - 3 x breakout groups (1.5 hours) – 11:15-12:45pm Lunch – 45 minutes – 12:45-1:30
- Multimodal Analgesia: Acute Pain Management – a plenary large group (1.5 hours) 1:30-3 pm
- Neuropathic Pain Management and Adjuvant Analgesia – a plenary large group (1 hour) 3:00-4 pm Break 15 minutes
- Team Collaboration and effectiveness (build us a PPC animal) – 5 or 6 small groups – we need quite a bit of simple primary school crafts and paper and scissors, etc. We can cover this session as part of an opening reflection after we do the evening event together on Monday night. (1 hour) 4:15-5:15 pm Ice Breaker and drinks – 5:15 - 6:30 pm Tuesday morning 8:30-9 Reflection and debrief of Team Collaboration activity
- Management of Fatigue, Psychosocial and Psychiatric Symptoms and Management of Neurological Symptoms - a plenary large group (1.5 hours) 9-10:30 Break – 15 minutes
- Management of Refractory Distress and Preparation for Imminent Death - 3 x breakout groups (1.5 hours) – 10:45-12:15 pm
- Professional Care for Professionals – 3 x breakout groups (45 minutes) 12:15-1 pm Lunch – 45 minutes – 1-1:45pm
- Grief and Bereavement – 3 x breakout groups (1 hour) 1:45-2:45 pm
- Communication and Planning – 3 x breakout groups (2 hours with a 15 minute break) 2:45-4:45
Wrap up and next steps – a plenary large group - 4:45-5:30 pm
Facilitators
Dr Justin Baker
Professor Julia Downing
Dr Eve Namisango
Dr McNeil, Michael
Dr Michelle Meiring
Please sign up to attend
Cost USD 50
Pre-Conference Day 2: Tuesday 23rd August 2022
B: Pre-conference workshop: DIGITAL HEALTH IN PALLIATIVE CARE (Virtual Only)
Description: The workshop will include a showcase of recent projects involving the development and evaluation of digital health approaches for palliative care in sub-Saharan Africa. We will explore the practical challenges of undertaking digital health research alongside how factors of sustainability and scale-up can be explored as part of digital health development.
Target audience: Program managers, monitoring and evaluation officers, policymakers, educationists, palliative care providers from all disciplines, supply chain managers, data managers, informatics specialists, and researchers.
Learning objectives: By the end of the session, participants will be able to:
- Gain insight into the experiences of digital technology implementers and the costs and benefits of utilising this approach
- Be introduced to relevant theory and frameworks to guide digital health activities and research in palliative care
- Identify opportunities for collaboration on digital health technology development for palliative care in the African region
Workshop panel
- Team member from Muhimbili University of Health and Allied Sciences or Ocean Road Cancer Institute, Dar es Salaam, Tanzania
- Dr Johnblack Kabukye – Uganda Cancer Institute, Uganda
- Chenjerai Sisimayi -World Bank
- Nuhamin Gebre and Nicola Ayers-Ethiopia
- Matthew J Allsop- University of Leeds Uk
- Palliative Care Association of Uganda-Uganda
- James Norris, The Digital Legacy Association, UK
Please signup to attend
C: Pre-conference: Research workshop (Physical and Virtual)
23rd August 2022
Kampala Uganda
Aim of the day:
This research methods workshop will enable delegates to develop their research skills through presentations and exercises presented by researchers who have experience of various research methods applied to palliative care in Africa.
Delegates will:
- Review the research journey, from question to publication (and beyond!)
- Understand ‘decolonising global health’ and its application to palliative care research in African settings
- Hear from African colleagues who have made a career in academia, learning more about the pitfalls and triumphs
- Understand how specific methods and skills can be applied to successfully design and conduct research
- Have the opportunity for a research MOT : bring your questions, ideas and challenges to your research progress. Get advice from a panel of experienced researchers.
- Tips and tricks on how to prepare for a successful abstract/poster/oral presentation
- But how can I write this up? Where to go when the writing juices stop Come away with a directory of useful resources – book titles, youtube and other resources which will help you along your journey to successful research
- Funding for research – can the APCA research network help?
Intended audience:
This workshop is aimed at multiprofessional delegates (nurses, social workers, clinical officers, doctors, pharmacists, allied health professionals, researchers, educators) who are currently, or would like to be, involved in research in palliative care in Africa.
Timetable 10:00 am - 4:00pm
9.30 |
Tea & registration |
All |
10.00 |
Welcome & introductions:
|
Dr Eve Namisango leads |
10.15 |
Each session: Introduces the methods, and then an example of how they did it using their research. The pragmatic reasons for choosing the method. Using the method that each presenter has been allocated, presenters will:
|
Chair – Dr Kennedy Nkhoma |
10.15 |
Session 1 Qualitative methods |
Dr Adwoa Bemah Boamah Mensah and Dr Yakubu Salifi |
11.00 |
Session 2 Feasibility studies |
Dr Lindsay Farrant |
11.30 |
Tea Break |
All |
11.45 |
Session 3 Mixed methods |
Oladayo Afolabi |
12.15 |
Session 4 Clinical trials in Palliative care |
Dr Kennedy Nkhoma |
12.45 |
Discussion and drawing out key messages |
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13.00 |
Lunch |
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14.00 |
How to design your study
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Chair: Eve Namisango Facilitators: all (allocated to topics by skills) |
15.00 |
Feedback from groups
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Aim for maximum 10 per group |
15.45 |
Summary and closing |
Dr Kennedy Nkhoma |
Contributors
Dr Lindsay Farrant- MBBCh, Dip HIV Man (SA), MPhil Pall Med
Dr. (Mrs.) Adwoa Bemah Boamah Mensah-PhD-Senior lecturer
Dr Kennedy Nkhoma: PhD-Research Fellow in Global Health
Oladayo Afolabi: PhD-Fellow -Palliative care
Dr Yakubu Salifu: PhD-Lecturer in Palliative Care
Dr Jane Bates – PhD-Palliative care specialist