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Tuesday, 25th June 2019
Palliative Care Outcome measures for person centered care

Person centred outcomes are not commonly included in measures used to assess the quality and effectiveness of palliative care services. By including the subjective experience, and engaging patients and families in decisions related to how their care should be delivered, we achieve better understanding of needs, greater consensus on treatment plans, better outcomes and satisfaction with care. Person centred outcomes should be a key consideration in designing and evaluating palliative care services. To make this possible APCA shares robust measures that can be used. We also have guidelines for users. This is available on our as a resource on our website.

The African Palliative Care Outcome Scale (APCA African POS)  Adult version

The APCA African POS contains 10 items, addressing the physical and psychological symptoms, spiritual, practical and emotional concerns, and psychosocial needs of the patient and family. The answers to all questions are scored using Likert scales from 0 to 5, with numerical and descriptive labels. Questions 1-7 are directed at patients; questions 8-10 are directed at family informal caregivers and include a 'Not applicable' option for use when the patient does not have an informal carer. The African version of the POS is usually staff-completed, owing to varying levels of patient and family literacy. Respondents indicate their answers either verbally or using a hand scale (0 = closed fist, 5 = all fingers open). The responses use a combination of high score = best status and low score = best status as a mechanism to ensure that administration, and response formulation to the individual items, are conducted with due care and attention. The APCA POS has been translated into several African languages, French and Arabic.

Register here to download the POS

Validation of a core outcome measure for palliative care in Africa: the APCA African Palliative Outcome Scale. Harding R, Selman L, Aguipo G, Dinat N, Downing J, Gwyther L, Mashao T, Mmoledi K, Moll T, Sebuyira LM, Panjatovic B, Higginson IJ. Health Qual Life Outcomes 2010;8(10). [http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2483665/]

The African Palliative Care Outcome Scale-IPOS

This version of the APCA POS includes all the content of the APCA POS and an addition of selected physical symptoms. For each of the symptoms experienced, patients are asked rate the extent to which these symptoms affected them on a scale of 0-5.

The Children’s Palliative Care Outcome Scale - APCA C-POS

This is novel 12 item person centred outcome measure for children and young people. It has self and proxy report version. We are in the final stages of getting the publication on psychometric properties of this measure out.

Contact info@africanpalliativecare.org  a copy of this tool

Read about the Impact of the APCA African Palliative Outcome Scale (POS) on care and practice